I have been doing some research into the psychological impact of coeliac disease on young people and came across the following DVD on Amazon. It has been developed by clinical psychologists and researchers at the University of Birmingham, and is called Gut Feelings: Young People and their Experience of Coeliac Disease.
The description is as follows: “For young people, living with coeliac disease can be challenging. In this groundbreaking DVD, developed by clinical psychologists and researchers at the University of Birmingham, you will hear from nine young people living with and managing coeliac disease in the UK. They are aged between 9 and 17 years and they all have their own stories about their diagnosis, how the condition affects them and how they manage their gluten-free diet. “Gut Feelings” is divided into three easily navigated chapters allowing young people, their parents and friends, healthcare professionals, and anyone else interested in coeliac disease, to view information about what coeliac disease is, how to manage the condition (at home, when out and about, and when on holiday), and what it feels like for young people to live with the condition on a day to day basis. The DVD will help to demystify the condition and give young people the support and confidence they need to manage their coeliac disease.”
Having been lucky enough to have been sent a copy of the DVD I can honestly say that it is a fantastic resource. The whole family sat down on Saturday afternoon to watch it together and nobody moved throughout the production. It is divided into sections so that it could easily be viewed in short bursts if you have very young children.
We were all very impressed by the content of the DVD. It covered all areas that may cause concern to a newly diagnosed coeliac and was positive throughout, focussing on how much you can still do when you have coeliac disease, whilst giving ideas of how to tackle the more difficult scenarios such as eating out and going on holiday.
Afterwards our little 6 year old coeliac reiterated all the positive things that she had seen and I think it really helped her to know that other children are like her and manage to deal with it, just like she does. If anything, I think it highlights how amazing children are at coping with what is thrown their way.
If you have a child who has just been diagnosed with coeliac disease, or who has little or no contact with other coeliac children (like ours) then I would really recommend getting this DVD. We learnt quite a few things from it and it also helped us to discuss how being a coeliac made our daughter feel. We will certainly be watching it again.
All money from the sale of the DVDs will be used to fund future work into assessing the psychological impact of coeliac disease in children…it is worth buying just for that!
Birmingham University are also carrying out some research into the transition from childrens services to adult services. If you know of anybody who is making that transition and are between the ages of 16-19 they would love to hear from you. Please email Natalie Craddock NXC243@bham.ac.uk if you think you might be able to help.
Disclaimer – I was sent the DVD for free but did not receive payment for this post. The free product in no way influenced my review.